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  • To a melody played ♪ 2

  • On the strings of our souls ♪ 3

  • It's a mother-son dance 4

  • that may not happen in the future. 5

  • Samantha Duran says she wanted to make sure 6

  • she had this memory with her son, Maddox. 7

  • It was just something that, 8

  • it just escalated into something I never imagined. 9

  • I just was doing it just to have 10

  • one special moment like this with my baby boy 11

  • to keep forever. 12

  • Maddox was diagnosed with spina bifida 13

  • while Samantha was still pregnant. 14

  • He's only two but has has 16 surgeries in his lifetime. 15

  • Last year, doctors found a cyst on his spine 16

  • that made the family realize 17

  • his time with them may be short. 18

  • He's been having these choking episodes 19

  • which are typically neurological related for him. 20

  • They predicted that it could 21

  • herniate or compress his brain stem and be 22

  • a life ending event 23

  • and naturally, we were beside ourselves 24

  • and we started making all the memories that we could. 25

  • Fearing she wouldn't get the chance 26

  • to dance with her son on his wedding day, 27

  • Samantha and Maddox got dressed up 28

  • and shared a dance to a song from the movie Coco. 29

  • At the beginning, I was just giving him 30

  • some kisses on his head and 31

  • it sounds weird but I was smelling him. 32

  • I was just soaking in everything that that moment was. 33

  • But then, about half way through, 34

  • I turned my head to the right and 35

  • that's when you can see I am trying so hard at that point 36

  • not to lose it because that's when it hit me 37

  • exactly what we were doing. 38

  • She's reminding parents everywhere 39

  • to enjoy whatever time they are given with their children 40

  • and why moments like this one are so precious. 41

  • While people might not have 42

  • the same exact diagnosis as him, 43

  • they have complications or obstacles themselves 44

  • and it's encouraging them to go out 45

  • and make the memories or do something like this 46

  • and I think that that's fantastic. 47

  • For insideedition.com, 48

  • I'm Mara Montalbano.

To a melody played ♪ 2

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