Placeholder Image

Subtitles section Play video

  • Hello, lovely people.

  • I am very often asked, "Jessica, how can you be so glamorous when you're disabled?"

  • Oh, my friend!

  • Have you ever considered maybe I'm glamorous *because* I'm disabled?

  • We'll dive more into that in a minute.

  • But let's begin with the announcement that half of you are here for!

  • It's my birthday!

  • And my first full line of merch has been released.

  • Wahey!

  • The line features varieties on this beautiful coat of arms made by my friend Ashe,

  • who is more commonly known as Marsupial Pudding; I shall put the link to her website down in the description.

  • She makes beautiful things.

  • It includes t-shirts; a hoodie; this sweater;

  • pillow; mug; socks; [pleased noise] tote bag - all of the goodies.

  • They're a variety of price points, so some items are more expensive; some are less expensive,

  • and I tried really hard to work out conversion rates.

  • Items also come in a variety of colours.

  • This jumper doesn't have to be purple.

  • [Exclamation of effort]

  • This pillow doesn't have to be white!

  • Apparel comes in the largest range of sizes I could make,

  • which comes in Extra Small to XXXXXL,

  • which is five X's, apparently, although I should point out that this sweater is actually apparently a Small -

  • I've tucked it into my skirt so you can't tell, but some things run big.

  • (I'm looking into how I can get sizes over that, as well.)

  • Everything ships worldwide, and you can find all items on the merch shelf

  • beneath this very video.

  • Ooo!

  • If, however, you live in an area where your browser or something does not support this,

  • I will also put the link to the shop directly into the description down below.

  • Thank you so much to members of the Kellgren-Fozard Club, who gave me some really good feedback

  • and helped me to shape the whole collection.

  • I shall be asking you some more merch-related questions throughout the year,

  • as I have a plan to release a new item or design [excitedly] every single month!

  • Some will be spoonie-related; some will be gay;

  • some will be both!

  • Some will be just general life stuff.

  • And please, please, please, please, please let me know on Twitter and Instagram when your things arrive.

  • Send me photos, because I would love to see those.

  • On with today's video, though: how to be glamorously disabled.

  • When I first became ill as a teenager, I realised that accessibility features are...

  • disgusting!

  • Beige is the main colour;

  • cheap plastic wins out,

  • and my beautiful house is deeply offended!

  • Over the years, I have developed a variety of ways to make disability aids into beautiful things!

  • Or beautiful thing into disability aids!

  • Tip number ten: Diet Coke!

  • If you've been watching me for a while,

  • you'll know this one.

  • But Diet Coke doesn't, you know, make you slim or whatever,

  • but it *does* stop your nausea *and* stop you from fainting!

  • Number nine: no need for ugly, plastic handrails -

  • just put dado rails all over your house.

  • *All* over your house.

  • All over!

  • Genuinely, it's the only safe way I can go up and down stairs.

  • Massive skirts and petticoats are really helpful in breaking your fall! [Exclamation]

  • If you don't have great fine motor skills,

  • tie ribbons onto your zips.

  • Also super helpful if you cannot reach your back.

  • And! it just looks really pretty.

  • Number six: rolling your hair is physiotherapy that makes you look good.

  • Number five: if your skin is numb, don't risk accidents!

  • Always wear ginormous oven gloves!

  • Or else you will burn the sensitive part here a lot.

  • And it might not hurt when you get down to the first level, but it really does when you get to the third.

  • This has nothing to do with being glamorous;

  • it's just a health and safety announcement in the middle of the video.

  • Number four: if you have back pain, you may have considered wearing some kind of back brace

  • or waist support,

  • because compression can really help with the pain,

  • but they are often HIDEOUS!

  • Have you considered, instead, wearing

  • [small gasp] a rather wide and rather tight elasticated belt?

  • It's not only vintage -

  • it's very attractive.

  • Number three:

  • for some of us with nerve conditions, underwear can be particularly painful.

  • Especially, you know, if you've got very sensitive skin;

  • it just--all the rubbing! Ugh!

  • And, if you happen to have scoliosis, like me,

  • or some other kind of curvy body

  • - oh, that underwear cuts in...to your bones!

  • Now, I have found two things that I think are really, really great.

  • When I was in Malaysia

  • at the start of last year, I discovered...non-underwired foam bras.

  • Like...they're memory foam.

  • And they hold everything up.

  • But there's no dicky wiring that eventually comes out and pokes you in the boob.

  • And--and they have these nice little bits.

  • Anyway, this one I found in a market in Malaysia.

  • But I'm going to put some links to others I have found.

  • And then when it comes to your pants

  • (which you call "underwear"

  • in America? No, knickers - whatever you think knickers are)

  • ...Anyway.

  • Shapewear four sizes too big!

  • Excellent!

  • Doesn't dig in at all

  • anywhere because it has--it spreads out the pressure.

  • Top tip!

  • If you find gripping handles hard,

  • you can tie a pretty little ribbon in between,

  • then hook your hand around, and pull!

  • And number one: Wobbly hands - always use a straw!

  • Side note: it protects your lipstick!

  • [Sighing]

  • Honestly, though, the best tip there is is just don't be embarrassed.

  • Easy to say; hard to do.

  • When I'm around new people my brain deems as "important,"

  • I will unconsciously put up with a high level of pain

  • in order to avoid the embarrassment of asking for the help that I need.

  • I can't control it; it's just what my brain has decided to do.

  • No, it's what my brain's been *conditioned* to do.

  • And it sucks!

  • But...! And this is largely due to my job being very focused around disability awareness,

  • so, pretty much everyone around me is aware of my disability and I am very privileged in that way.

  • But, I do genuinely care

  • so

  • much

  • less

  • what people think about me.

  • I've been alive for three decades now,

  • and for half of that time, I struggled trying to fit into an able-bodied world, and

  • I was judged harshly because of it.

  • I pretend to be ditsy because it hurts so much less than,

  • 'Oh, I just dropped that cup because my fingers randomly decided to be straight;'

  • or, 'I walked into a wall 'cause I just couldn't see it;'

  • or even, 'I'm not actually late; I genuinely do think I'm on time, I just can't read clocks...'

  • It was when I became so ill that I was forced off the "normal" life path that I think I began to really live.

  • Now I tell people proudly about my disabilities, and if they're embarrassed - it's on them.

  • Ugh. No matter what negativity comes into my life,

  • I don't allow it to cloud my thoughts; I just throw it back into the world.

  • I'm not going to sit here and tell you that every single day, I am a ray of sunshine, and I never feel gloomy.

  • That is obviously a big, fat lie.

  • Never believe anyone who tells you that they are

  • [falsely happy voice] super happy all day, every day, and they have never shed a tear in their life!

  • [Normal voice] That is a lie, or else they are on something.

  • But aging is awesome! It's the best thing that has ever happened to me.

  • Truly.

  • My life just seems to be getting better year on year, even if my body isn't.

  • So, yay! Happy Birthday to me.

  • And here is to many more Happy Birthdays.

  • I hope you found some of my tips useful.

  • Please do let me know down below some of your own glamorous thoughts.

  • And I shall see you in Monday's video.

  • Mwah!

Hello, lovely people.

Subtitles and vocabulary

Click the word to look it up Click the word to find further inforamtion about it