Subtitles section Play video Print subtitles when you pull it a cool put mom's name, Wash your hands in peace. Yes, you can get a photo bed of us telling state mayoral, put on yuppies. But then, from that moment on, virtually everything has to be done for him on your face later. It's the simplest up right. Put on your face around Haft rate. That's it. From Seton drunk. The bathrooms are starting. Is Dele routine in all the way through the T. Look away. Turn around. That's it. Lay that. That's a fact. It they will play that slowly. Careful. And that's 24 7 Yeah, it's 50 miles each way. So it's 100 mile round trip. My name is Julia. I care for my husband, Bob. We live in their sex. What are you hoping for today? I hope you make me laugh. He usually does. Um, I hope he recognized May. What's hard? A few having him in hospital or having him its speed harder at home. And it will be hard. A guy you talk state look like from the other day when I bragging you. You told me you were on the ship. Remember that what I should Where were you going to then? Don't know. OK, Bob has dementia. He has Parkinson's. And he has diabetes. That causes a number of problems for him. Number of problems for May Hiss. Keira. Full time. Kara. I had to give up my job to look after Bob. Ready? 123 Good man. You know, people think dementia. You're just gonna get forgetful. You're going to get a little bit muddled. It's That's just the tip of the iceberg ago. I'm looking forward to in coming home because I've missed him. I want to give him another chance. I want to allow it to give him some life. Coming. Coming with what? Bit of freedom, Liberty, mobility and mind He's got left. May name Czar McGuire A litany. Constant Fontaine. I've been married to John a 46 nearly 46 years and I look and care for John Low as he has all Samos. Okay, drink, etc. Get a drink, etc. If we call that now you know what's what, guys. John B. Just it say the happy bowl looking claimed person didn't really worry about anything. Worker. Oh, hold worker doesn't always wanna were cold worker, but what is plodding along late Everybody else dcd brought family off in Regis Thought would make his rule wrong into retirement. Yes, and see what happened then. Oh, sitting on the doctor that they watching the time. But unfortunately, that didn't really receive your eyes costs. Obviously, John was diagnosed in 2012 when he was 57. I think one of the reasons I fell in love with him he was just so family. It was his humor. It just made me cry with laughter. Remember the way he Waas had would looking He waas And then I look at him now and he started changed after 3123 Bob Spain in and out of hospital for many months, but was only 69. So really too young toe, be thinking of other options. Welcome home. Okay. Going right. What's it like to be home, right? You're good. Easier? Are you hopeful? Have a chance to prepare the house. But I've had more of a chance to prepare mentally and emotionally. Yeah, I'm gonna come and help you out of that young coming. Yeah, I paid the trial. Did you? You used to get good days. Then you'd get good half days, then you'd get good hours. You still hang on to that. Hope that hes back Course he isn't back. This is one of the things that could take so long. Toilet. I think I'm quite positive what body I think is telling me. Otherwise. It's eh, Pretty. You lose a little bit more. No matter what you do, you will never come back. Next one. It's a cruel disease. It's awful. That's gonna be nor happy ending. What whatsoever? It's just awful. Pininfarina! Koubriti! Okay. Don't. Yeah, right. What you think of an What do you think about it? Uh huh. She's still a lot for you, isn't she? All you get back is known that you're doing your best, right? You're gonna go for it then straight up the stairs to bed. Pope, go forward. Don't lean back on. May cause we'll both go down. This stays. Is it getting more difficult to love the man that you love? I don't think it's harder to love him. It's hard to love some of the stuff that happens. No flakes. Dementia is a faith Because not only does it steal the husband 54 for me Bob, Help me. It steals your hopes and it steals your dreams. It steals your future. And in a in a strange way, it's stealing. My life was so decent now. So noting that door just get a picture of probably the worst part of the guy. I have to try and have something to look forward. So because if you haven't, it's gonna claim you it's gonna make you ill. Is gonna make you depressed because you're exhausted. You should not be in bed with you over in an ideal world. Absolutely, yes. It's not the adventure that is killing May. It's exhaustion. God bless you. Sleep tight. Don't wake me up. That was quite half. It isn't sustainable, I told myself. I can tell himself in the head. Raindrops are falling on my head and just like the guy who's here to support, you just have to train grasp onto bits. What you think, still, mate? May you may get something out. That's what I try to do cross any detainee but of happiness, for want of a better word in just crying. Meet more is your friend. Good morning to you. Want to sit you in, George city sits here, John 300 all afterwards. Just hope I can do the best look after shown. So we do the balloon first traces. Can you see that John might have to go into some residential care in In the end, being realistic, that probably will happen is for them. It's too far for sure. Hey, doesn't know. So I don't think I'm so hungry. Team, too. You very tough on yourself. And you're very lovely to him. Doesn't the horsey and not me? Oh, 00 So probably I recall this because there may be somebody can give us the answer. What was supposed to do at night? People say to me about the nights up was shouting his head off. Some nights he was falling out of bed as well. He was just waiting the floor. It was laying in your in. I couldn't lift him, got hurt myself. Oh, yeah, 10 miles. I think care is desperately needs a time out. Stand up, stand up, Stand up. There's never that wonderful break. Unless shoot, you're able to pay for it. And care is so expensive. I'm going to my GP that if you go Bob's going to the app has to come toe. You talked about residential kid? Is that an impossibility? Where are we with that? Because we've got savings. Would have to fund that. Wonderful. Thank you. When I've been phoning around various homes, some of them were quoting £1800 awake. And I think how how are you charging that? I'm quite convinced that somebody's getting very rich out of frail, vulnerable, very, very sick people. And that is wrong. No. Yeah. Any more news on there? Get on the anybody can see on there. You remember. Remember that was was Amanda. Amanda wanted for call. Alu connected. Love. Did you see this? I said, Luke. They trained not to think about it too far ahead because no one knows what tomorrow is going to bring. What about the future? Our voyage about are probably from D one because of the money. Yeah, I probably couldn't afford to live here, of course, of the teeth or drugs money with him anyway. So really, if it was this moment in time, I would be left with nothing. I mean, after all the care you're giving, you could still end up with Uh huh. scary. It's very scary. Very scary. Trying to work something out. Yeah, yeah, it's the Chinese head. He knows what he's gonna dough. But things windows with dementia that it's almost like the brain fires up and people are able to do things. And then suddenly they know. And that's where that hope that hope comes in when they're okay and you say I've got them back, be heaven, Find a big through. You can't do things we can't organize. He can't sort. He can't plan. He is lost Those skills and those abilities when Bob has not rested well, he's not very good mobility wise. Let's just talk about you for a moment. What do you want? I just want him to be well, I want a word. Magic moment of America. I want a miracle. I can't have that. Dementia will take over and destroy every part of your life is a thief. It comes along and it steals. And actually, in the end, it kills as well. On that Saito. Other carers to all in your power. Don't Don't let it claim you as well, Theo. Loneliness is just terrible. War report here. One of port of them. There's a massive port missing. It's not really John. It's not really him. No, but it is. It's still John Still, drama where put its different John. If you had a moment of clarity with him if he had a moment, what would you say to him? Come back back. I miss you so much.
A2 dementia john care moment bed worker Dementia care: ‘It’s not dementia killing me, it’s exhaustion’ - BBC News 5 0 林宜悉 posted on 2020/07/02 More Share Save Report Video vocabulary