Placeholder Image

Subtitles section Play video

  • Welcome to the Here's My Story channel.

  • I'm Sadie.

  • I live in a beautiful house.

  • The best part is

  • I bought this house with the money I made.

  • I swim in this wonderful pool every day.

  • We have four luxury cars in our garage.

  • We have a full kitchen staff and servers.

  • My parents left their jobs last year because,

  • thanks to me,

  • we are millionaires!

  • They don't need to work anymore.

  • So how did I make a fortune?

  • Hang tight.

  • I'll tell you something

  • you'll probably never hear again:

  • I owe all this fortune to a disease!

  • More specifically,

  • a genetic disorder.

  • You heard that right!

  • Thanks to this genetic disorder,

  • I can make thousands of dollars

  • by working only a few days a month.

  • Now I'm going to tell you

  • all about this interesting condition I have,

  • and how it made me a millionaire.

  • The medical term for my condition is

  • "Congenital Insensitivity To Pain."

  • It's called CIP for short.

  • You could call it the

  • "Not Able to Feel Physical Pain Disorder."

  • It's a genetic disorder.

  • There are tons of videos on Youtube about people with it.

  • You might have watched one of those,

  • but I'll still briefly explain to you what my disease is

  • because it's really interesting.

  • First of all,

  • this is a very rare disease.

  • It's estimated that there are only five hundred CIP patients

  • in the world.

  • Although it's recognized as an issue that has to do with genes,

  • the real cause is unknown.

  • To put it simply,

  • my brain doesn't know what pain is.

  • This is why I can't feel pain when I should.

  • Don't be jealous.

  • This is not a good thing at all.

  • I'll explain with an example.

  • Normally, feeling pain is a defense mechanism.

  • Let's say you're in the shower.

  • You turned on the hot water by mistake.

  • In that second,

  • you feel intense pain,

  • and turn the hot water off immediately

  • to avoid burning yourself.

  • My process doesn't go that way.

  • If I accidentally  turn on the hot water,

  • I don't feel any pain,

  • so I can't tell if the water is hot enough to burn my skin.

  • I continue showering with boiling water.

  • Meanwhile, I get these deep burns in my skin,

  • but I can only tell that I got them when I get out of the shower,

  • and see the wounds.

  • It can take months for my skin to heal and recover.

  • As you can tell from this example,

  • people who don't feel pain

  • lack an important bodily defense mechanism.

  • On the other hand,

  • I have to say

  • there are advantages to being a CIP patient.

  • It hurts like hell when you hit your pinky toe, right?

  • I'm lucky that way.

  • Even if my pinky toe is broken,

  • I don't feel pain.

  • Similarly,

  • when I step on a Lego piece,

  • it doesn't hurt.

  • I don't feel bee stings.

  • My mosquito bites don't itch.

  • I don't have menstrual pain.

  • I've never had a tooth, or headache in my life.

  • But not feeling pain doesn't make me a superhero, either.

  • Let's say I went camping in nature.

  • A snake bit me

  • while I was walking among the trees.

  • Naturally,

  • I'd feel no pain.

  • But if the snake was poisonous,

  • I'd be affected by its bite.

  • I could even die.

  • I was diagnosed with this condition at the age of four.

  • My family bought a pair of roller skates for my birthday.

  • I was teaching myself how to skate in front of our house.

  • After trying forlong time,

  • I learned how to keep my balance.

  • Shortly after that,

  • I could skate easily.

  • But there was a significant problem.

  • I didn't know how to brake yet.

  • There was a small cactus patch on the side of the road.

  • I couldn't brake,

  • so I flew straight into the cactus.

  • My face,

  • my back,

  • my arms,

  • and my feet were stuck by cactus spikes everywhere.

  • I went home covered in spikes.

  • It was my mom's day off.

  • She screamed when she saw me.

  • I smiled at her and said,

  • "Mom, come out and watch me!

  • I can skate now!"

  • "Sadie,

  • you have needles all over your body.

  • Doesn't it hurt, honey?"

  • my mom asked,

  • apparently shocked.

  • "I don't know, Mom.

  • What does that mean?

  • What happens when it hurts?"

  • I replied.

  • My mom was even more shocked

  • when she realized I didn't know what "hurt" meant.

  • When my dad came home that night,

  • she told him what had happened.

  • They sat me down, and asked some questions.

  • Then they did a few tests.

  • My mom nervously pricked  my arm with a needle.

  • They were shocked

  • when I told them it didn't hurt at all.

  • "When you were a baby,

  • you never cried  while getting vaccinated.

  • I was always  surprised about that,

  • but I never thought you were unable to feel the pain,"

  • my mom said.

  • The next day, we went to seedoctor specializing in this issue.  

  • They ran some tests on me at the hospital,

  • and I got diagnosed with CIP.

  • There is no treatment for this genetic disorder.

  • Patients have to take care of themselves for the rest of their lives.

  • As I said earlier,

  • pain is one of the body's defense mechanisms.

  • Some people lose their lives  because they can't feel pain.

  • I think you now have enough information about my condition.

  • So how did my disorder make me rich?

  • That's what's next.

  • Also, I'm going to need your advice on an issue at the end of my story.

  • It was about a year and a half ago.

  • We were on our way to visit my grandmother.

  • We had a terrible traffic accident.

  • Our car swerved, went off the road,

  • and flipped over three times

  • before landing in the woods.

  • When I opened my eyes,

  • I realized my parents were unconscious.

  • I wasn't in good shape myself, either.

  • was obviously injured.

  • But thanks to CIP,

  • I didn't feel anything.

  • That's how I was able to call 911,

  • and let them know about the accident.

  • Shortly after,

  • an emergency response team found us.

  • Since it was a significant accident,

  • television crew also arrived.

  • The reporter was surprised to see me talking casually

  • with the paramedics while filming us and our car.

  • The reporter asked,

  • "You're injured but look so at ease.

  • How is this possible?"

  • "Because I don't feel any pain.

  • I'm a CIP patient,"

  • I replied.

  • The TV reporter asked me questions about CIP.

  • He was shocked to hear that I didn't feel any pain.

  • After he finished talking to me,

  • he turned to the camera and said,

  • "Dear viewers, we are witnessing  a miracle right now.

  • This poor girl was injured  in the accident,

  • yet she feels no pain.

  • More importantly,

  • this is how she saved her family's life by calling nine-one-one.

  • She's a hero!"

  • My parents were worse off than I was.

  • recovered in a relatively short time.

  • However they both had many broken bones,

  • and had to stay in the hospital.

  • During that time,

  • a few journalists,

  • and TV personalities came to interview me.

  • One day, as I was getting ice cream,

  • someone in the line said,

  • "Hey, I saw you on TV.

  • You're the girl who doesn't feel any pain,"

  • and wanted to take a selfie with me.

  • That day,

  • I realized I was low-key famous,

  • thanks to my disorder.

  • Because my parents couldn't work,

  • we started having financial problems.

  • Plus, the hospital bill was  going up every single day.

  • I told my parents,  

  • "I want to quit school, and find a job." 

  • They were vehemently opposed to it.

  • "We'll never let you quit school.

  • We will figure out a way,"

  • they said.

  • One day, the doctor walked into their room.

  • "You've hit your insurance limit.

  • You need to continue the treatment at home now,"

  • he said.

  • I was so sad when I found out.

  • I cried all night.

  • But there was nothing I could do.

  • The doorbell rang the following day.  

  • Two nicely dressed ladies were standing in front of me

  • when I opened the door.

  • I invited them in.

  • One of the women said,

  • "I'm the CEO of Dragonflame.

  • We are a hot red pepper brand,

  • and produce the hottest peppers on the market.

  • We have an offer for you.

  • Would you consider appearing in our commercials?"

  • This offer got me really excited.

  • I ran to the hospital, and asked my parents their opinion.

  • When they permitted me to do it,

  • I became the face of the Dragonflame brand.

  • After signing the contract with the company,

  • I earned ten years' worth of my parents' combined salaries.

  • And since I could pay their hospital bill,

  • they stayed and finished their treatment.

  • A few weeks later,

  • the commercial was filmed.

  • According to the script,

  • I ate the hottest pepper the company offered.

  • Then I acted like my mouth was on fire.

  • At the same time,

  • I was screaming,

  • "So hot!

  • So hot!

  • Even I can't handle this."

  • At the end of the commercial, this slogan came up:  

  • 'Even the girl who can't feel  pain can't handle Dragonflame!'"

  • Three months went by.

  • The CEO of Dragonflame called me.

  • "They loved our commercial.

  • Our sales doubled.

  • We have a new product coming up.

  • We're doing another commercial for that.

  • We are offering you double the previous price.

  • We'd be happy if you'll do it,"

  • she said.

  • This was a fantastic opportunity.

  • Of course, I said yes.

  • My parents had gotten better, and left the hospital.

  • With the money I made from the  commercial,

  • I bought this house we live in.

  • We all moved into our new home.

  • My disorder came in handy for the second time.

  • The first time was when I saved my parents' lives.

  • I got famous when the hot pepper commercial aired on TV.

  • People stopped me on the street to say,

  • "That's the girl who doesn't feel pain,"

  • They would take photos with me,

  • and share those photos on their social accounts.

  • That's how I became popular online.

  • I opened Instagram and TikTok accounts,

  • and began answering all the questions people sent me.

  • The most frequently asked question is,

  • "Do you really feel nothing?"

  • In response, I stick a needle in my arm,

  • smile at the camera, and say,

  • "I really don't feel any pain."

  • As I said at the story's beginning,

  • I make really good money by working only a few days a month.

  • I've been getting offers  from various other companies.

  • For example,

  • I did a commercial for a vitamin  company a few months ago.

  • Last month, I did photos for a plaster brand.

  • This month,

  • we are doing a commercial for a new product for Dragonflame.

  • Last week,

  • something unexpected about my disorder happened.

  • I got a call from a famous university,

  • and they invited me there.

  • They've been doing CIP studies for some time.

  • After many tests,

  • they finally developed a drug for it.

  • I'd been pretty chill about my condition

  • because there was no treatment.

  • But when this option materialized,

  • I got confused.

  • They're still not sure if the drug can cure my disorder.

  • Since there are so few CIP patients worldwide,

  • I'll be one of the first test subjects.

  • If the drug is successful,

  • will start feeling pain like you.

  • I've given this a lot of thought,

  • but I can't make up my mind.

  • If my condition is treated,

  • I'll start feeling pain like everyone else,

  • and my body will have a working defense mechanism.

  • This would be great for my health,

  • but on the other hand,

  • I'm making so much money thanks to my condition.

  • If I get treatment,

  • I'll lose my title  as "the girl who doesn't feel pain."

  • Do you think I should try the drug?

  • Please share your ideas in the comments.

  • Thank you so much.

Welcome to the Here's My Story channel.

Subtitles and vocabulary

Click the word to look it up Click the word to find further inforamtion about it