Subtitles section Play video Print subtitles Hiya. Remember to look right here. Yeah. Haaa! Gotta look right there. Gotta look right there. Like you're talking to a person like a stranger! I just told her, like, "Yeah, you were born different. "That's just who you are." And she owns it Mm-hm. I like to do YouTube videos for my fans because I love them, I guess. Ow. OK, there you go. She mumbles. In her case, like, we don't put any fear into her or, like explain what progeria is or even say the word progeria. We just treat her like a normal ten-year-old, just try to give her the best life. She chuckles, yeah. You're welcome. She sees herself as being different. There are days where she goes, "I wish I had hair, "I wish I looked like everybody else," but then she goes and says, "Who needs hair anyways? "I have a bunch of wigs." I like to do make-up. I like to play barbies. I like to play on my phone. I like, definitely, definitely, like to watch videos. I like to play with my brothers. But sometimes I get a little grumpy so I guess not, but... But... I basically like everything. Unicorns are my favorite, I guess, cause they're pretty, sparkly, pink. Your spirit animal is weird too. You can't? You can't tell him? No. You tell him. What do you want me to tell him? Whisper it, whisper it. She said... ..she thinks you're cute. Yeah? I think you're cute, so. She giggles. That was awkward. That was awkward! Yes. It can be hard some days, especially at night. She sighs. When everybody goes to sleep and, you know, I'm just thinking about the day. Just thankful for another day, I guess. Adalia Rose has a rare genetic disorder which affects less than 500 people worldwide. Get out of here. No. Adalia has a rare ageing disorder called progeria. Everybody makes progerin, it's what makes you age, and she just makes a lot of it, so that's what makes her age faster. In addition to premature ageing, some of the additional symptoms are limited growth, lack of body fat and muscle, loss of hair, visible veins, abnormal facial features, high-pitched voice and stiffness in joints. I like other Barbies like this one. I like her. I think this is called Pop-Up Camper... Because it's Barbie, I don't know. Give me the backpack! Statistically, most children with Progeria don't live past 13-year-old. We don't talk about life expectancy or any possibility of this could happen or that could happen to her. We just live day by day. I mean, anything can happen to anyone, right? Exactly, yeah. Tomorrow is a special day for Adalia. Tomorrow she turns 11. It's tomorrow? What! The days are going so by, like fast. I'm very excited. I can't wait to open my presents. Despite the difficulties she faces, Adalia is an internet superstar. # OK, I'm rapping with my friends # Getting all this money, stacking dollars, stacking cents... # Well, in the beginning when we first started her Facebook, it was just for giggles. It was surprising how fast it grew. She has, like, 14 million people on her Facebook and all her subscribers on YouTube. We like to pump it. And we like to dab. We like to dab. I definitely think it's fair to describe Adalia as a diva. An ocean wave. People have been asking about Adalia's eye. The story about that is that... Oh, God! Stop. I know, but... SHE WHIMPERS She's very self-conscious about it, but... So, surfer's eye, it's basically like scar tissue forming CRUNCHING NOISILY I basically... Um... Yeah, I'm her puppet. Roll your eyes back. Ha-ha hah! HE SCREECHES Having a social media superstar 11-year-old is crazy, especially when we're out in public, you know. A lot of people recognise her. Yeah. What did you think? I've been down the slide! They say good things to her all the time. They love all your videos. There's constant comments of how she's inspirational and how she doesn't let anything stop her. And every time she hears those things, it makes her really happy. Let me show you one more video. Smile! Look at Daddy. Can I get a tissue? There you go. Are you really going to film me blowing my nose? Oh! All right, diva. How do you look? Fabulous. Adalia, do you think it's fair to say that you are a little bit like a diva? Umm... I don't know. Because I am a diva. I get what I want. I do. They're cool. Are they new? No. Bye! Bye! We went to the mall and we got some ice-cream with chocolate syrup. And then we went to Claire's, and I got a wand and a tiara. Where's my tiara? Ok. My favourite thing about being her mom is watching her grow and, like, seeing just how different she is from everyone. Just seeing how she takes on every day and just learning from her, as well. Mmm. ALL: # Happy birthday to you. # I would describe Adalia as a wild one. Yeah. Stubborn. Determined. Driven. Courageous. Crazy. I'm just making videos doing what I wanna do. I can't talk ok don't judge my body. I like dabbing. It's my favorite one.
B1 US diva barbies superstar stacking whisper guess Our Girl Who Ages Too Fast: Adalia Rose | Living Differently 85 2 April Lu posted on 2018/08/28 More Share Save Report Video vocabulary