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  • Hiya. Remember to look right here. Yeah.

  • Haaa! Gotta look right there.

  • Gotta look right there.

  • Like you're talking to a person like a stranger!

  • I just told her, like, "Yeah, you were born different.

  • "That's just who you are." And she owns it Mm-hm.

  • I like to do YouTube videos for my fans because I love them, I guess.

  • Ow. OK, there you go.

  • She mumbles.

  • In her case, like, we don't put any fear into her

  • or, like explain what progeria is or even say the word progeria.

  • We just treat her like a normal ten-year-old,

  • just try to give her the best life.

  • She chuckles, yeah.

  • You're welcome. She sees herself as being different.

  • There are days where she goes, "I wish I had hair,

  • "I wish I looked like everybody else,"

  • but then she goes and says, "Who needs hair anyways?

  • "I have a bunch of wigs."

  • I like to do make-up. I like to play barbies. I like to play on my phone. I like, definitely, definitely, like to watch videos.

  • I like to play with my brothers.

  • But sometimes I get a little grumpy so I guess not, but...

  • But... I basically like everything. Unicorns are my favorite, I guess, cause they're pretty, sparkly, pink.

  • Your spirit animal is weird too.

  • You can't? You can't tell him? No.

  • You tell him. What do you want me to tell him?

  • Whisper it, whisper it.

  • She said...

  • ..she thinks you're cute.

  • Yeah? I think you're cute, so.

  • She giggles.

  • That was awkward.

  • That was awkward! Yes.

  • It can be hard some days, especially at night.

  • She sighs.

  • When everybody goes to sleep and, you know,

  • I'm just thinking about the day.

  • Just thankful for another day, I guess.

  • Adalia Rose has a rare genetic disorder which affects less than 500 people worldwide.

  • Get out of here. No.

  • Adalia has a rare ageing disorder called progeria.

  • Everybody makes progerin, it's what makes you age,

  • and she just makes a lot of it, so that's what makes her age faster.

  • In addition to premature ageing, some of the additional symptoms are limited growth, lack of body fat and muscle, loss of hair, visible veins, abnormal facial features, high-pitched voice and stiffness in joints.

  • I like other Barbies like this one.

  • I like her.

  • I think this is called Pop-Up Camper...

  • Because it's Barbie, I don't know.

  • Give me the backpack!

  • Statistically, most children with Progeria don't live past 13-year-old.

  • We don't talk about life expectancy

  • or any possibility of this could happen or that could happen to her.

  • We just live day by day.

  • I mean, anything can happen to anyone, right? Exactly, yeah.

  • Tomorrow is a special day for Adalia. Tomorrow she turns 11.

  • It's tomorrow?

  • What! The days are going so by, like fast.

  • I'm very excited. I can't wait to open my presents.

  • Despite the difficulties she faces, Adalia is an internet superstar.

  • # OK, I'm rapping with my friends

  • # Getting all this money, stacking dollars, stacking cents... #

  • Well, in the beginning when we first started her Facebook,

  • it was just for giggles.

  • It was surprising how fast it grew.

  • She has, like, 14 million people on her Facebook

  • and all her subscribers on YouTube.

  • We like to pump it.

  • And we like to dab.

  • We like to dab.

  • I definitely think it's fair to describe Adalia as a diva.

  • An ocean wave.

  • People have been asking about Adalia's eye.

  • The story about that is that...

  • Oh, God!

  • Stop.

  • I know, but... SHE WHIMPERS

  • She's very self-conscious about it, but...

  • So, surfer's eye, it's basically like scar tissue forming

  • CRUNCHING NOISILY

  • I basically...

  • Um...

  • Yeah, I'm her puppet.

  • Roll your eyes back.

  • Ha-ha hah!

  • HE SCREECHES

  • Having a social media superstar 11-year-old is crazy,

  • especially when we're out in public, you know.

  • A lot of people recognise her.

  • Yeah. What did you think?

  • I've been down the slide!

  • They say good things to her all the time. They love all your videos.

  • There's constant comments of how she's inspirational

  • and how she doesn't let anything stop her.

  • And every time she hears those things, it makes her really happy.

  • Let me show you one more video.

  • Smile!

  • Look at Daddy.

  • Can I get a tissue?

  • There you go. Are you really going to film me blowing my nose?

  • Oh!

  • All right, diva. How do you look?

  • Fabulous.

  • Adalia, do you think it's fair to say

  • that you are a little bit like a diva?

  • Umm... I don't know.

  • Because I am a diva.

  • I get what I want.

  • I do.

  • They're cool. Are they new?

  • No.

  • Bye!

  • Bye!

  • We went to the mall and we got some ice-cream with chocolate syrup.

  • And then we went to Claire's, and I got a wand and a tiara.

  • Where's my tiara? Ok.

  • My favourite thing about being her mom is watching her grow

  • and, like, seeing just how different she is from everyone.

  • Just seeing how she takes on every day

  • and just learning from her, as well. Mmm.

  • ALL: # Happy birthday to you. #

  • I would describe Adalia as a wild one.

  • Yeah. Stubborn.

  • Determined.

  • Driven. Courageous.

  • Crazy.

  • I'm just making videos doing what I wanna do.

  • I can't talk ok don't judge my body.

  • I like dabbing. It's my favorite one.

Hiya. Remember to look right here. Yeah.

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