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  • - Hello, lovely people!

  • If you're new here then hi, I'm Jessica.

  • I use my channel to make videos about heavy things

  • in a light hearted way.

  • Mainly disability, deafness, and chronic illness related,

  • but also gay things.

  • We have a lot of gayness here.

  • Subscribe if that seems like your thing.

  • Today we're diving back into a sticky topic, bodies.

  • We all have them, we all have feelings about them.

  • We all have feelings about other people's bodies,

  • often in relation to our own.

  • Or we're just really rude and enjoy casting judgment

  • on other people's appearances.

  • Supposedly we're meant to do the most thinking

  • about our bodies during our teenage years,

  • but really I think we're always in constant

  • ebb and flow of positives and negatives about our bodies.

  • Often that relates to growing up or aging,

  • but the relationship can become particularly strained

  • when illness or disability is included in the mix.

  • We've probably all heard the term body positivity

  • and likely a very vague idea of what that means.

  • Being positive about bodies that are often marginalized

  • is the original concept,

  • because it's actually a political movement

  • created by plus-sized women of color

  • who face a lot of negativity about their bodies.

  • But it's be co-opted to be the peak of Instagram blandness

  • giving another excuse for people with

  • socially acceptable bodies to

  • take pictures of themselves in bikinis.

  • What? It's true, I mean, who doesn't love a good

  • off-duty model in a bikini shot,

  • but please do not act like you are curing the world hunger

  • by posting your perfect derriere.

  • That's not body positivity, the political movement.

  • It's just body confidence, the feeling.

  • What I will say however is that it's lovely

  • that there's a greater encouragement to think

  • and feel positively about our bodies.

  • It's the only body we've got after all.

  • It's important to care for it, but here's a secret.

  • I don't love my body and that's okay.

  • From a photo you would probably look at my body

  • and think, "Well, that looks like a perfectly average

  • "socially acceptable body to me!"

  • And yes, yes yes yes it is.

  • It's also really broken and messed up on the inside

  • and that gives me some complex feelings,

  • which I had a discussion about

  • with a lovely girl called Meg,

  • as part of Teenage Cancer Trust's #StillMe campaign.

  • The idea of #StillMe is to acknowledge that

  • whilst your body will go through changes

  • you can still be positive about it

  • or not if that's how you're feeling today.

  • - [Both] Hello lovely people.

  • - That was really good.

  • - Okay, I think I messed up at the end.

  • - Well done.- No, no, I was impressed.

  • - Okay, thank you.

  • - Today I am joined by Meg and we're gonna be talking about

  • how you don't actually have to love your body,

  • but also you can love your body even when other people

  • are saying you couldn't love your body

  • and there's no right way or wrong way

  • to think about your own body because it's your body.

  • So you and I both have had kind of interesting -

  • - Relationships.

  • - journeys with our bodies.

  • - Yep, yep.

  • - Yeah, do wanna tell us a bit about yours?

  • - I was 21, so this was two and half years ago

  • and I was diagnosed with a blood cancer

  • called Hodgkin's Lymphoma.

  • So I went through chemotherapy and lost my hair

  • and that obviously had a really big impact on

  • just how I felt about myself.

  • I came out the other side,

  • last week was my two year clear,

  • but I still, you know, you still deal with these things.

  • Your relationship with your body's completely changed

  • so yeah, that's why I'm here to talk about it.

  • - And already it being young is quite a difficult time

  • - Yeah.

  • - to get ill in itself because when we're teenagers

  • or when we're in our early 20s,

  • we're still developing our own relationships

  • - Yeah.

  • - with our bodies.

  • And I imagine when you were 21 you didn't have

  • this, kind of, crystal clear vision of

  • - No.

  • - who you were and what you look like and

  • you were totally okay with every single part of you.

  • - No, definitely not but I think I also had

  • never really had to think about it.

  • I was quite lucky up until that point

  • that I never had to really understand

  • how I felt about myself.

  • I was kind of confident, just like a normal,

  • I was just a normal 21 year old

  • and then I didn't have any of the coping mechanisms

  • you need for things like that

  • because I just never had to learn them.

  • You realize things you thought you were confident about,

  • you maybe weren't and then you learn a little more about

  • what actually made you confident before

  • and it probably wasn't what you thought it was.

  • - No, I get that.

  • When I first got ill I was 17

  • and up to that point, I hadn't really ever thought about

  • the way I looked

  • - Yeah.

  • - that much at all. I was really into fashion,

  • but the way that my body was formed

  • - Yeah.

  • - Wasn't something that upset me or that

  • - Yeah.

  • - I ever had to really even think about.

  • And I guess there's that level of privilege with that,

  • - Yeah.

  • - I had a body that no one was gonna look twice at.

  • - And when you did get ill - Fine. (laughs)

  • - When you were 17,

  • what, for you, was the hardest part about that?

  • - So when I became really ill when I was 17,

  • I lost weight kind of gradually

  • over the first year, I think.

  • And then it just sort of plateaued because I have

  • connective tissue problems that associate to my guts

  • and my digestion and how I digest things

  • and I stopped being able to digest food properly

  • so I was in taking a lot of calories.

  • I may be having cake and cream for breakfast

  • and I just could not keep weight on.

  • There was almost something that was positive about it

  • in that I look more ill.

  • - Mmm-hmm.

  • - And it was easier for me to be treated

  • - Yeah.

  • - Because when you go hospital and

  • you have an invisible illness,

  • you don't get treated necessarily very seriously

  • - Yeah.

  • - Because people can't tell what's going on,

  • but when you look very ill,

  • suddenly people are like, "Oh, can I help you?"

  • - Yeah.

  • - It had a really negative impact on the people

  • around me in my life,

  • which I found the most surprising part of it.

  • - In what way?

  • - In that, people around me would sort of

  • remind me that I didn't look good.

  • - Right, yeah.

  • - They would be like, "Oh, it's such a shame

  • "that you're this thin." And I'm like,

  • - Yeah, not helpful.

  • - Is this an okay thing to say to someone? I don't think so.

  • - I used to have really really long blonde curly hair

  • and then when I knew I was gonna lose it,

  • I wanted to donate it to the local Princess Trust

  • - Oh!

  • - Cause they give me a wig so I was like,

  • "Okay, fine, you can have some of my old bleached hair,

  • "that's fine. You can take it."

  • And so I cut it into a little pixie to give,

  • and then when it started to fall out from there,

  • I thought, "Okay, I'm just gonna shave it

  • "before it all falls out."

  • I actually, weirdly, had a really really fun day with it

  • because my friend came 'round and did my make-up,

  • I bought a new outfit,

  • I got some really big colorful earrings

  • and it helped me feel like me when I didn't look me at all.

  • - And it's also taking that choice back,

  • - Right, yeah.

  • - That, like, shaving your own head

  • - Yeah.

  • - Before all the hair falls out.

  • - Exactly. Because at that point,

  • and you must feel the same,

  • that all these decisions and things are happening around you

  • but you are not asked about it and

  • it's just nice sometimes to grab on to whatever you can

  • to make it feel like it's part of your own

  • decision what's happening rather than feeling

  • completely helpless about the whole thing.

  • - I had a thing when I was hospital where I had to, like,

  • I had to color my hair.

  • Every night looking my best,

  • I had to put my red lipstick on, like, looking horrific.

  • I did not look good.

  • - It's the little things, it really is.

  • I used to have my make-up done to go to chemo

  • just to try to cover how gray I was looking

  • and I'd walk in and the nurses would be like,

  • "Gorgeous, glamorous patient." - You're looking nice.

  • - Well, okay. - Where have you been today?

  • (laughs)

  • - I remember feeling really guilty about feeling the way

  • I was feeling about my body because at that point,

  • you kind of feel like, "Got bigger problems.

  • "I've got more I should be dealing with, you know.

  • "Other people have got it worse,

  • "I have it really easy, I've not,

  • "You know, nothing else has really changed for me."

  • But, it was really important for me

  • and, yeah, really helped.

  • - It can be quite difficult when we get a lot of messages

  • from society and social media

  • and this isn't going the way you probably think it will,

  • but people are like, "Oh social media, it's so bad

  • "because it, you know, makes us focus on our looks,

  • "blah blah blah blah blah

  • "And it's kind of belittling."

  • But then, at the same time,

  • we do live in a society that is focused on looks

  • and when the choice gets taken away from you,

  • and when you are looking not your best,

  • - Yeah.

  • - it's very nice to feel like I have the power in this

  • and I can decide to put on make-up.

  • Just because something is happening to our body,

  • it doesn't have to change who you are.

  • - So I had an, she was called, like,

  • a Clinical Nurse Specialist

  • from the Teenage Cancer Trust,

  • and she, we would meet every couple of weeks

  • while I was on treatment,

  • just to chat about things and how things were going,

  • and I started to really struggle with

  • just, my confidence and it was developing into

  • an anxiety about things and it was, just,

  • a really low time for me

  • and she was like, "Why do you feel so, kind of,

  • "lacking in confidence?"

  • And I said, "It's because I don't have any hair anymore."

  • And she was like, "Oh, so were you confident

  • "because you had hair?"

  • I was like, "No, that's silly. Of course I wasn't confident

  • "because I had hair, I was confident - "

  • And we would like work through the different things

  • about me and my life and the people around me

  • that made me feel like me, like Meg,

  • and realize that some of it might look a little different

  • right now but actually the basis of it was still there.

  • - Yeah, like, our outsides are just representations of

  • the confidence that we feel inside based on

  • who we are as people.

  • - Yeah.

  • - How awesome we are.

  • - Exactly, and things that we're, like, passionate about

  • and people we like to spend time with,

  • they make you feel like you.

  • - Yeah.

  • - So that's really important to, like,

  • get as much of as you can.

  • I wanted to talk to you a little bit about social medias,

  • and we touched on it before but, I think,

  • I started following when I got poorly

  • a lot of people who blogged

  • or posted on Instagram or whatever

  • about their own illnesses, not just cancer,

  • but, like, any form of serious illness

  • and talked about it a lot,

  • and I thought it was interesting for me because

  • you would see some things on social media

  • and, like, when I would just be, like,

  • lying in hospital scrolling on Instagram,

  • having, like, the worst FOMO about

  • I was wasn't on holiday with my friends.

  • - Yeah.

  • - But then you also were connected to people

  • who were talking about things that you were experiencing

  • in a really lovely way

  • - [Jessica] Yeah.

  • - That made me feel like I wasn't going through it on my own

  • I wanted to ask a little bit about, kind of,

  • you know, why you got into talking about it

  • and having that positive conversation about it.

  • - Yeah, I think it's too easy nowadays to have

  • that idea about how evil social media is

  • and while it's true that, especially very ill people

  • who we kind of feel like we've dropped out of life

  • - Yeah.

  • - For a bit, you do have that fear of, "Oh gosh,

  • "Look at everyone else with their life that's moving on,

  • "Excellent, good, now I feel worse."

  • But there is that amazing positive side of

  • you finally feel connected.

  • - Yeah.

  • - Because it's very difficult to talk to your friends

  • who maybe you've had years and years,

  • and you love them and they love you,

  • but they don't know what it's like to have cancer.

  • - They don't get it, no.

  • - You know, like, I can't explain this to you.

  • I can tell you and you can feel sorry but

  • you cannot feel exactly what it feels like.

  • And I, when I was particularly really ill,

  • I spent two years on bed rest and while I was there,

  • obviously spent a lot of time with myself

  • and I finally got through thinking

  • that there must be other people

  • who are also in that same position

  • and feeling like they probably felt as alone as I did

  • and so, what I should try and do would be

  • to get out and to spread awareness

  • of the kind of people who fall through the gaps,

  • - Yeah.

  • - But also bring people together, so it's like,

  • "Hey, I went through that too, you're going through that,

  • "it's okay, there's gonna be an end,

  • "and if there isn't an end, that's also fine.

  • "And we can all come together."

  • So I think social media is an incredibly positive thing,

  • because it allows me to connect the outside world

  • whereas I don't actually leave my house that much.

  • I'm actually just in my house.

  • YouTube is a perfect job for me.

  • - (laughs)

  • - Because I don't have the energy to leave my house.

  • - I actually didn't know anyone else who had had cancer,

  • like, it wasn't, it doesn't really run in my family.

  • I knew friends who's aunt may have had it a few years ago,

  • but I definitely didn't know of anyone

  • my own age who had had it,

  • and I was living in my parent's house which is

  • a little bit kind of in the country,

  • it's not, I wasn't around people

  • and having people who were, like yourself,

  • were, like, talking about it,

  • for people who you won't interact with, kind of,

  • in person but you find them online,

  • was so important and just, yeah,

  • to make you feel like you weren't doing it on your own

  • and make you feel a little bit more normal.

  • I think I really craved feeling normal

  • when I felt really really abnormal.

  • - I think it also helps with things

  • like reducing your guilt.

  • - Yeah.

  • - Like we talked about how you can,

  • you feel the guilt of like, "Why do I care about my hair

  • "when everyone says I should be caring about these

  • "bigger and more important things?"

  • But also the guilt of, like, you know what?

  • I just don't love my body.

  • - Yeah.

  • - And a lot of social media is that that, kind of,

  • you gotta be really positive about yourself,

  • just love yourself no matter what, and I don't now.

  • There are many days when I'm like, "I hate my body."

  • I would trade in a heartbeat, like,

  • I wanna be in some other body thanks, right now, let's go.

  • But unfortunately, can't happen.

  • But I think it's a shame to minimize

  • those feelings, the guilt, - Yeah.

  • - Because you don't have to love your body

  • and you don't have to hate it

  • all of the time. - No.

  • - There's like that happy in-between, everything's okay.

  • - I just, I had a saying when I was poorly,

  • and I always just said, "Feel your feelings."

  • So if I was feeling sad, feel sad, it's okay.

  • Don't try and be like, "We've got this.", positive.

  • And if you're feeling happy,

  • don't feel bad for feeling happy.

  • And I think it's the same with not feeling very comfortable

  • in yourself because, you're right,

  • this whole body positive movement is

  • phenomenal and more power to it,

  • but at the same time, when your body's going through

  • a lot of changes caused by illness or whatever,

  • it can be really hard to identify with that

  • when you're just not feeling it.

  • Like, you're just not feeling your body

  • and it's done something to annoy,

  • or you don't like what it looks like,

  • or it's changed really drastically,

  • feeling like you shouldn't be feeling like that,

  • or you should be celebrating it because look where we are,

  • look what it's done for us.

  • But it's okay, I think like,

  • what I've learned from it is not view it as, like, static.

  • Right? That you now,

  • I now love my body or I now hate my body.

  • It's like, it will change.

  • It changes multiple times a day,

  • it changes over weeks and months.

  • Like, for me, it's about working towards

  • feeling confident in myself.

  • So as long as I've got that driving me,

  • it's fine and it's okay to, like, not recognize yourself

  • in your body and - I like that.

  • - Just keep trying.

  • - Yeah, feel your feelings.

  • - Yeah. Feeling your feelings - That's nice.

  • - That's what I always say. - I like it.

  • There we go, I think that is the wonderful end message

  • of this video that you can take away with you.

  • Feel your feelings, no feelings are bad feelings.

  • - No.

  • - Because they're yours.

  • Thank you so much for joining us, Meg.

  • - Thank you so much, it's been so lovely.

  • - It's been lovely to meet you.

  • Thank you so much for watching.

  • I hope that you take from this video

  • the message that you and your personality

  • are unique and special and that's what's amazing.

  • Plus, that your feelings are yours

  • whether they're good to bad,

  • they're yours to feel.

  • Thanks for joining us for this video

  • and I shall see you in my next one.

  • (upbeat music)

- Hello, lovely people!

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