Name: 我被誤診了[CC] (I was misdiagnosed [CC])
Uploaded: 2021-01-14T10:50:48.000Z
Duration: 17 min 55 s
Description: 【看影片學英語】數萬部 YouTube 影片，搭配英漢字典即點即查，輕鬆掌握單字發音與用法，長久累積看電影不必再看字幕。

So... some of you may, from the title of this video,

情態副詞

in fact a couple of you already guessed on my Instagram

when I teased that this video is going to be made

I make positive educational and amusing videos

twice a week about disability, chronic illness,

subscribe if you enjoy painful life lessons  packaged in happy ways

slightly wrong this baby isn't quite like the other ones doing this

doesn't normally hurt babies but this one seems to be really crying about it

so let me continue this poking and maybe we'll find out why I was a little bit

too delicate I look a bit too floppy a little bit too slow and then after that

area is just too fast I spent my entire childhood either ill or injured and

accused of faking it 90% of the time I was known of my two signature

accessories an ALICE band and a tube bandage my mother was forever being

called into my nursery or my primary school because Jessica injured herself

again one of my most powerful memories is being dragged as a three-year-old

from room to room above our nursery by my friend and she had both of her hands

on my forearm and I remember looking up at her face and thinking what jolly

furniture was and feeling the bumpy play mats under my belly and then suddenly

the kind of pain that makes you no longer human

my entire freakin arm was hanging off just flopping around from a bit of skin

and it hot like you wouldn't believe and I couldn't even breathe because it

was just stabbing myself harder with every breath like a knife being pushed

between every single rib they called my mother who came and picked me up and

then had to take me to hospital herself I remember being in such pain that I was

mentally sat in a little room in my head was my animal instincts took over in my

entire body and I just I'm really screamed I probably would have bit

someone if they'd let their hand get too close according to my mother it took a

very long time before someone found his senior doctor but

to casually Swan over and just shove my arm back into place and that was in the

last time no no it happened more often than we could remember so my mother

developed a system for checking whether my arm is dislocated or just injured she

gave me a chocolate button which I would grab with my good arm and then before I

had time to eat it would offer me another one if my arm was just injured

I'd reach out with the bad arm and if it was dislocated I try but failed to lift

it and then cry loss there was a lot of crying I would say anything involving

bouncing because my ankles are essentially jelly trampolines her fun

until they snap your ankles not a big fan of rough-and-tumble also involved

many injuries Camille will just take a moment to recognize her spirit slapping

Lieb oranges to be injured I mean just wow some pouring why do adults think the

children faked injuries it is the least fun thing in the world I was a very

dramatic teenager and I had this well if I got hit by a car and broke my leg

everyone would show me intense love and realize how great I am thoughts but then

I accidentally paralyzed both my arms and I love stirs with my friends it was

very very boring Plus slide I did have some great party tricks to go seduced

occations because apparently most people can't do this and no fingers do have

been back like this and they can't fold themselves up into a kitchen cupboard

when playing hide and seek madness I may have been terrible at gym classes but I

was excellent when it came to warming up stretches that counts for something

my general floppiness kind of flew under the radar when it came to my health

because I had a lot of other things that were wrong with me I was exhausted a

terrible digestion fell over constantly got dizzy just from standing up was in

constant pain all of the time had terrible migraines my extremities roar

is going numb and I feel the cold like someone is actually peeling my skin off

oh and I bruise like a peach i bruise dry so much as looked at the

aforementioned trampoline I didn't even have to get close to a trampoline I just

had to be in the general area watching other kids having fun on the trampoline

and my body would just become one massive bruise have I mentioned

trampolines enough are you getting that I would love a trampoline to jump up and

down on preferably with some kind of safety mechanism to protect my feet

little ankles anyway I'm actually finding this video really

sometimes I cover difficult stuff by being amusing probably gonna cry now

which feels like a very silly response to the fact that I was just joking about

trampolines but I always envied those kids who got to do gymnastics or play

sports or go on a bloody trampoline I've just been weak all my life and I can't

hate it I cannot allow myself to be unhappy with it

because then what what then this is my body and this will always be my body and

I can't allow myself to be annoyed because that clearly serves no purpose

but sometimes I guess being annoyed is the right thing to do anyway i paralyzed

both my arms for a year and a half when I was 17 and you probably heard this

story before and if you haven't desert card above with a video that explains

that happened and when they finally wrote to have what was wrong with me I

was diagnosed with something called hereditary neuropathy with liability

pressure palsies that was worked out by a blood test don't know I had to do that

I'm missing a gene my dad is too case closed right except it didn't

explain all of my symptoms because it didn't explain my hearing problems or I

floppiness or my dislocation or anything except the numb fingers and completely

inappropriate response to touch stimuli by which I mean feeling cold air as if

I'm being flayed and feeling cold water as if I'm on fire oh and the thing where

I paralyzed this myself I always forget that people's bodies

don't do that at the time the doctors mention something about mobility but

didn't really register because they use the term as an adjective not as the

actual name of a diagnosable condition so in my head I just chalked up

everything listened to my hat to the genetic condition I knew I had hm PP

which was also really helped by the fact that I turned 18 and suddenly I didn't

have a consultant doctor anymore because health systems great when you're a child

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我被誤診了[CC] (I was misdiagnosed [CC])

entire

struggle

apparently

access